S2 Bonus-An interview with Pediatric Hematologist, Dr. Andrew Campbell

Dr. Andrew Campbell, Director of the Comprehensive Sickle Cell Disease program at Children's National Hospital in Washington, D.C graces our presence on the show. Dr. Campbell enlightens us with the latest in cures for sickle cell disease, educates us on first-of-its-kind legislation, the Sickle Cell Disease Treatment Centers Act of 2022, natural remedies, and many more insights about Sickle Cell Disease and Bone Marrow Transplant that you can't miss.

This episode is a must-share for anyone who is personally or knows someone who is experiencing sickle cell anemia. Press play now!

Chapters

• 1:00 Meet Dr. Andrew Campbell!
• 1:01 Sickle Cell Disease Treatment Centers Act of 2022
• 1:05 How to get a bill passed
• 1:05 Getting a bill passed
• 1:10 School
• 5:10 Ensuring patient and family voices are heard
• 5:39 International reach: Ghana research
• 7:26 Youtube video: Sickle Cell Anemia, a patient's journey
• 7:26 What does a hematologist do?
• 7:27 Resource: Youtube video of a patient's journey with sickle cell
• 9:15 The oncology side of hematology
• 10:36 The role of Bone Marrow Transplant in a cure for sickle cell
• 13:00 Summarizing commonalities in Sofia's and Kennedy's story
• 15:02 Listening to black voices
• 20:16 Patient advocacy
• 22:35 Dropping the guard: The power of listening and apologizing
• 24:51 Resources for families prepping for BMT
• 25:17 Anchoring yourself for BMT
• 29:50 The dream: Welcome to your BMT network 🫶🏾
• 31:29 Peer support
• 34:19 Shining a spotlight on mental health 🔦
• 36:02 Lasting pain
• 37:33 The future of sickle cell treatment
• 41:17 Gene Therapy (Dr. Campbell drops ALL the knowledge. Get ready!✍🏿)
• 41:23 Gene Therapy explained
• 43:33 N🚫 GVHD: How does Gene therapy work?
• 45:15 Reproductive health and Gene therapy
• 49:20 The downside of Gene therapy
• 51:57 How to sign up for clinical trials
• 55:15 Natural sickle cell options
• 59:45 TAKE ACTION: Sickle cell advocacy and legislation
• 1:05:00 How to get a bill passed
• 1:10:00 School
• 1:13:00 Dr. Campbell's parting thoughts and words of encouragement to the sickle cell community