S2Ep6-Kennedy's story ☺️

Sofia's bone marrow transplant happened in 2011. In this episode, listeners are introduced to my niece, Kennedy, who offers a more recent perspective on the transplant process.  Kennedy underwent a Bone Marrow Transplant in 2019. She'll share her story and her journey of recovery and healing from Sickle Cell Anema. Kennedy and her mom, Tamika, offer informative and at times, shocking stories that occurred during Kennedy's journey.

Another can't miss an episode!

Chapters

• 0:45 Meet our guests: Kennedy and Tamika!
• 3:15 The why behind Kennedy's transplant
• 4:05 Managing sickle cell: Emotional and Dietary changes
• 4:06 Resource: Caring for patients with sickle cell, Dr. Andrew Campbell
• 6:35 Gall bladder issues and Sickle Cell
• 7:52 Coping with Sickle Cell and Bone Marrow Transplant
• 11:10 Differences in the black community: Sickle Cell Awareness and Information sharing
• 11:30 Kennedy learns there's something different
• 14:13 Aphoresis
• 14:56 Could stem cell treatment be an option?
• 17:28 Finding a donor-Partial vs full match
• 17:55 Partial match transplant precautions
• 19:30 Survivor's remorse
• 20:10 Finding the best partial match donor
• 21:40 Preparing for transplant-Chemo, radiation, medication
• 22:15 Transplant stress
• 23:29 Kennedy's and Graft v Host disease (GVHD)
• 25:04 Sharing concerns with your medical team
• 25:33 Not my baby! Kennedy's and the transplant protocol
• 28:00 Kennedy is discharged!
• 29:37 Post discharge hospital experience
• 30:55 Violating Kennedy and Tamika's voice: When medical providers cross the line
• 36:00 Tips for medical providers when addressing concerns with black patients
• 38:17 Kennedy's life post transplant
• 41:00 Returning to school
• 44:10 A young person's perspective on school post pandemic: Tips for school staff
• 46:20 A parent's perspective on school post pandemic
• 50:20 Kennedy's career plan
• 50:36 Call for diversity in Sickle Cell careers